Stories

A comorbidity nightmare with endometriosis, a bleeding disorder and fibromyalgia. “At 24, I had my first keyhole surgery to remove endometrial lesions on both my

A 1 in 1,000,000 rarity Rare Disease Day 2019 The theme for Rare Disease Day 2019 is: “Bridging health and social care” The twelfth edition

The teenager with multiple chronic disorders My son Jayden spent the first three months of his life at Sydney Children’s Hospital fighting to stay alive

Lucas has severe Heamophlia A; a happy, healthy, very active AFL obsessed 6 year old boy. New Year’s Eve 2010, 5pm – A day that

Two brothers with severe haemophilia This is Luke, 8yrs, & Jake, almost 6yrs of age. They both have Severe Haemophilia A. Luke was diagnosed at

A young boy with severe Heamophlia A In late 2015, our son Elias was diagnosed with Haemophilia, a rare and genetic bleeding disorder. Elias was

A little boy with haemophilia When Eli was born, he was a perfectly healthy baby. It wasn’t until he was six weeks old and he

Women getting heamophlia treatment I’m Chloe, I’m a Stylist & Art Director from Perth, Western Australia. As a female in a developed country and diagnosed

Discovering Jye had heamophlia Our son Jye was about a year and a half old when we decided he needed a set of table and